Showing posts with label autism. Show all posts
Showing posts with label autism. Show all posts

Friday, March 20, 2009

Science for sale

Please enjoy the above webcomic (from xkcd).
The essential problem that I have with science is bias. Every study, every statistic, has been bought and paid for by someone. Data can be manipulated in all manner of ways. A classic example is the "link" between the MMR vaccine and autism- initially put forth in a 1998 study, whose lead has now been found to have manipulated data. "Despite involving just a dozen children, the 1998 paper’s impact was extraordinary. After its publication, rates of inoculation fell from 92% to below 80%. Populations acquire “herd immunity” from measles when more than 95% of people have been vaccinated.
"Last week official figures showed that 1,348 confirmed cases of measles in England and Wales were reported last year, compared with 56 in 1998. Two children have died of the disease." This is just one example- this 1998 study, though flawed, has influenced many people.

In 2002 I had the opportunity to go to a conference that I thought would be about my field (health care), but it really was about sales: selling medications. Chocolate and champagne flowed freely. (I swear I had no idea of the hedonism that awaited me. I went in good faith.) One of the many powerpoint luncheons really struck me: it was sponsored by a company that I knew made a drug that did not work. Time and again I would offer it to patients, and after trying it once, they all said the same things: It doesn't work; the side effects are intolerable. Then, at this powerpoint, the data-- with graphs conveniently skewed for emphasis-- showed that it worked...just a little bit, in conjunction with another medication that we all knew does work, does its job, does it reliably well. We were encouraged strongly to use the med that sucked. It was a weird experience for me, and rather surreal.

My point is that everyone (full disclosure: this includes me) has his or her own agenda. Data can be spun in different ways. I really want to trust science-- really I do--but I am not sure that human beings, with all our flaws, are capable of objectivity.

Tuesday, March 17, 2009

"De gustibus non est disputandem."

"There is no accounting for taste."
There was a gentleman who spoke at the PEE Committee meeting who stated that the part of the Milwaukee River where the North Avenue Dam was removed (shown above) is the most beautiful part and the best for recreation, feeling that the section up by Lincoln Park- the section where the river is impounded by the Estabrook Dam- is extremely unattractive. (I took this shot from the pedestrian bridge to Caesar's Park. I know it's brown. It is not officially spring yet, and things are still kind of brown.) That is one opinion, welcome in a world where differing opinions are respected.


Here is another shot I took the previous day, though, off Commerce Street not far downstream from the area of which he spoke. Not quite so attractive. Maybe the condo owners think so. But it is hardly a natural-appearing area. I call these "side dams"- they hem the water in from the sides, elevating the water level, and curbing the natural ebb and flow that a stream or river would have.

Awhile ago I used to work in for Special Recreation programs. There was a group of autistic adults who used to come to class and they taught me a lot. One of the women used to ask me the same question every night. "Why are people different?" she would ask me, and then give me the answer: "Because people like different things!" Then she would hand-flap and run away, a laughing Buddha. I think of this often. Why don't other people understand this? Is it a truly difficult concept? Is this city too small to have different sections of the river, for people with different taste? for people who "like different things?"